The Blessing

It was a summer filled with lots of transitions, new work schedules, kids going to camp plus sports schedules and a blood clot that knocked us sideways and prevented us from traveling too far.  We are a group that likes to know what’s coming at us and so far we are not batting a thousand.  …

The Blood Clots

We celebrated Father’s Day with Brad’s parents and his brother and sister in law’s – Brint and Nikki – family.   During the celebration we decided to pull together a pick up baseball game at a local ball field.  With coolers packed, we drove around the corner and filled the field with our families…not a competitive …

1st ALS Clinic Visit

May 4, 2017 We arrived at PENN and met with the Nurse Practitioner and Neurologist.  Various physical measurements were recorded including breathing capacity.  OT/PT and Speech visited.  Its a long day between waiting and talking with the different specialists and mentally processing.  They suggest no more walking Howie, it can throw the balance off if …

2nd Opinion

April 2017 Thank you for all of the well wishes going into my appointment at Johns Hopkins yesterday.  Amy and I feel very positive after our time with this doctor, he informed us of several possibilities and additional treatments.  While the diagnosis does not change we feel more informed.  Here are the highlights: 1.  Diagnosed …

Sharing

February 2017 Yesterday we had an appointment with Brad’s neurologist at PENN.  He has been diagnosed with a form of ALS, a motor neuron disease in his left arm. It is slow progressing and rare to stay in one limb but we are looking forward to getting some time under our belt to understand what …